Butterfly painting for ‘butterfly boy’

Fiona Young with the mural dedicated to her son, Jordan, at Orchard School in Springfield.
Fiona Young with the mural dedicated to her son, Jordan, at Orchard School in Springfield.
0
Have your say

MEMORIES of little boy whose skin was as fragile as a butterfly’s wing have been captured for ever at his former school.

‘Cotton wool child’ Jordan Young died last August after a brave battle against epidermolysis bullosa, EB.

He was just nine years old.

The rare genetic condition caused his skin to flare up in blisters at the slightest touch and Jordan spent his life literally wrapped up in cotton bandages.

But despite being in constant pain, he threw himself into life at Springfield’s Orchard School, where he was popular with his classmates.

Jordan’s mum Fiona said: “We wanted something that would help the other children have happy memories of Jordan. A mural seemed a perfect idea.”

Artist Anna Starling painted the background scene on the wall of the school’s physio unit.

Then pupils did their bit by making butterflies out of paper, card and wire to stick on to the mural.

On Tuesday Fiona visited the school for the official unveiling of the mural.

“It was amazing and a wonderful way to remember Jordan,” she said.

Fiona, who has thanked Orchard staff and Jordan’s carers, said she still misses her son constantly.

“I always knew there would come a day when I would lose him but I thought I had more time.

“I really thought he would make it into his 30s.

“But it is a great comfort to us that he is not suffering any more.”

Jordan contracted an infection through his skin in July last year.

The infection spread through his tiny body and he died on August 18, moments after he had said goodbye to Fiona and her husband David.