A young fundraiser did not let a rare medical condition stop him from taking on an epic ten-hour sail this month, which saw him raise money for the children’s ward at Milton Keynes Hospital
Ewen Shackel, 13, from Wavendon Gate, took on the Emberton Sailing Race after being treated on the ward last year for Acute Disseminated Encephalomyelitis (ADEM), a rare inflammatory condition of the brain and spinal cord.
Although still suffering with headaches, backache, memory loss and tiredness, Ewen finished in fifth place. He and his teammates from the Milton Keynes Sailing Club Youth Team also won an award for Best Mixed Ability Team.
Ewen said: “The staff on the children’s ward make a world shadowed by doubt a brighter place – and this is my way of saying thank you.
“I wanted to do something significant to raise money and hope this will make a difference, specifically to older children on the ward.”
Ewen’s mum Michelle said: “Our time on the ward was very worrying, but the staff were very supportive to all of us. They really are special people, making the difficult times easier.”
Children’s ward manager Alison Turner said: “Ewen is an inspiration to others, his efforts were incredible and I am thrilled that he has raised an amazing amount of money for our ward.”