When chronic illness prevented six-year-old Johnathan He from eating solid food for five months, he cooked up the perfect distraction – training to become a mini chef.
The brave Broughton youngster, who suffers from a rare and life-threatening genetic condition, painstakingly prepared food for others to eat when he was unable to swallow a morsal himself.
Now his courage is set to earn him royal recognition – in the form of a prestigious national award to be presented by Prince Harry.
His hospital specialist was so impressed with Johnathan that she nominated him for the 2013 WellChild Awards, which celebrate the bravery of children who cope with serious illness.
This week he was named as a winner in the Inspirational Child category and has been invited to be a star of the show at next month’s presentation ceremony.
His nominator, clinical nurse specialist Helen Braggins, told the Citizen: “Johnathan has an amazing ability to turn a bad situation into a new adventure.
“When caring for other children, I often find myself thinking: ‘What would Johnathan make of this?’ He is a truly remarkable young man.”
Jonathan has x-linked CDG and congenital glaucoma. He is partially sighted and spends long periods in hospital, often in isolation.
His future remains uncertain but a high risk cord blood transplant could offer some hope, say doctors.