For the love of my angel Emily

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A HEARTBROKEN young mum has vowed to help the specialist nurses who let her take her beautiful baby daughter home to die.

Tiny Emily was born with a previously undetected genetic syndrome which meant she was only predicted to live for four days.

But 26-year-old Katie Elmer was determined her 4lb 5oz daughter should not spend her short life in a hospital cot.

She and her partner, Ben Mainwaring, brought Emily back to their Newport Pagnell home where they immediately organised a family christening.

For the next three weeks, their daughter did not leave their arms, while nurses from the hospital’s Complex Needs Nursing Team visited constantly to provide support.

“Those were the most valuable and precious 26 days of my life and I owe so much to the nurses,” said Katie. “They allowed Emily to meet all the wonderful family and friends who loved her so much.”

After a normal pregnancy, Katie had an emergency C-Section at 36 weeks when it was discovered the baby was not growing properly.

Almost immediately doctors diagnosed the rare Trisomy 18 syndrome, which causes fatal organ defects.

“None of that mattered to me when I had my first cuddle with her. I was mummy to a beautiful, amazing and strong little girl and I couldn’t have been prouder,” said Katie.

Emily died on March 19, the day after Mother’s Day.

“She is an angel in the sky and she is my inspiration,” said Katie, who has already set up a website called Emily’s Star ( and a Facebook page at

She is planning events to raise cash for children with severe and life-threatening illness cared for by the complex needs nurses.

“I want to make something positive out of this awful situation,” she explained.