A VERY special cheesy knees-up is set to take place at the end of the month to raise money for medical research into a genetic condition that affects everything from digestion to skeletal development.
The event, which has been organised by Ted’s Gang and will take place at The Crown in Stony Stratford’s Market Square on June 30, will be raising money for research into Shwachman Diamond Syndrome.
Ted’s Gang Cheesy Knees Up will run from 7.30pm until midnight at the pub and will include a free casino, glass of fizz, BBQ and as much live cheesy music and dancing as people can handle.
Ted’s Gang is a registered charity set up to raise awareness of and research funding for Shwachman Diamond Syndrome.
It was named in honour of Ted Jakeman, who has the condition.
None of the money raised by the charity goes to Ted. Instead, it is used to pay for research and eductaion.
Shwachman Diamond Syndrome is an inherited genetic condition that affects digestion, growth, immunity, bone marrow, teeth, skeletal development and a few other things besides. About 30 per cent of those with SDS go on to develop AML, the worst kind of leukaemia.
The condition is very rare and there are only about 60 people diagnosed with SDS in the UK – about one in a million.
Tickets for the cheesy knees-up cost £20 each and can be purchased at www.tedsgang.co.uk or via The Crown.