Dazzle walks set for Milton Keynes raising awareness for rare syndrome

This annual walk is confirmed for May, supporting those who suffer with this rarely discussed syndrome.

Tuesday, 11th May 2021, 2:38 pm
Updated Tuesday, 11th May 2021, 2:40 pm

On Friday May 28, members and volunteers from Ehlers-Danlos Support (EDS) UK will be walking across Milton Keynes raising awareness for the syndrome.

The walk will start in Springfield and continue along the Grand Union Canal, the team should be easy enough to spot, they'll be dressed as zebras.

Zebras are the charity mascot, every year May is considered 'awareness month' for EDS UK, the biggest UK charity highlighting this health issue.

Ehlers-Danlos Support UK

Ehlers-Danlos Support UK is a group of 13 individual genetic conditions that affect the body’s connective tissue.

EDS can affect people in different ways. For some, the condition is relatively mild, while for others their symptoms can be disabling.

The different types of EDS are caused by faults in certain genes that make connective tissue weaker. Some of the rare, severe types can be life threatening, according to NHS guidelines.

A spokesperson for the charity states: "These are complex syndromes affecting many systems of the body at once, despite this EDS is often an invisible disability. Symptoms commonly include, but are not limited to, long-term pain, chronic fatigue, dizziness, palpitations and digestive disorders. Such problems and their severity vary considerably from person to person."

You can find out more about EDS on the charity's website here.