Family of a 3-year-old girl with rare genetic disease struggle to cover treatment costs in Milton Keynes
A young child from Milton Keynes is receiving treatment after being diagnosed with a rare condition affecting her skin and nervous system.
At just 3-years-old, little Lara Sofia from Milton Keynes has been diagnosed with neurofibromatosis type 1 - a rare genetic disease that causes tumours to grow along the nerves throughout the body.
Her symptoms include dark coloured spots on her skin, headaches, dizziness, heightened sensitivity to noise and difficulty making eye contact. Since her diagnosis, Lara has already faced serious health challenges, and her journey is far from over.
And the diagnosis has not only changed Lara’s life, but that of her entire family’s.
Her father, Ion Toma said: “As parents, it is heartbreaking to watch your child go through pain and uncertainty, knowing there is only so much you can do on your own.”
Lara is currently undergoing ongoing clinical treatment, which is essential for managing her condition and giving her the best possible chance at a healthier future.
The treatments cost around £800 a month, and the family are struggling to keep up with the new financial burden. They have set up a fundraising campaign to help cover the costs of treatment.
Ion said: “We are asking for your help during this incredibly difficult time. Every donation, no matter how small, will go directly towards covering Lara’s medical treatment and care.
“If you are unable to donate, simply sharing this page with others would mean so much to us and could make all the difference.
“Your kindness, generosity, and support give us strength and hope when we need it most. From the bottom of our hearts, thank you for standing with Lara and our family.”
You can support Lara and her family by donating on Lara’s gofundme campaign.