Marie Curie survey: Have your say on end of life care in the East of England
Marie Curie is calling on people in the East of England to share end of life experiences
The UK’s leading end of life charity is asking people in the East of England to participate in a survey that looks at experiences of palliative and end of life care across the region.
Conducted by Marie Curie in partnership with NHS East of England, the survey seeks to understand experiences of people in the area over the age of 18 living with or supporting others with terminal illness to ensure everybody gets the best possible experience of care at the end of life.
The online, anonymous survey should take no more than 15 minutes to complete with questions focusing on participants’ personal experience of terminal illness, the care received and what they think can be done to improve care for those approaching the end of their life and those supporting them.
Last year Marie Curie provided direct support to more than 61,800 people through its services. The charity provides expert end of life care for people with any illness they are likely to die from and those that care for them, through its free information and support line, as well as expert care in its hospices and in people’s own homes.
Marie Curie East of England Associate Director Strategic Partnerships & Services Jonathan Clemo said: “We are inviting people who have been affected by terminal illness to take part in this survey to help us highlight what is working well but also help identify priority areas for improvement.
“We’ll be sharing the findings with those responsible for palliative and end of life care in the East of England, calling on them to incorporate a set of new recommendations into their strategies, plans, and service offerings.
The survey has had some great feedback so far.
I feel very grateful to have had the opportunity to talk with the team at Marie Curie about what my sister went through at the end of her life. It has not only helped me to process things a little, but also given me the opportunity to speak out for her – something I was not able to do at the time. I hope my contribution to this study can ensure more people receive the dignity and respect we all deserve at end of life.
“Ultimately, by taking part in the survey, you will be helping to ensure that more people get the best possible care and support at the end of life, reflecting what’s most important to them,” added Jonathan.
The survey closes on September 30.
Completing the survey requires participants to reflect on their own experiences of living with terminal illness and accessing care – or in the case that they are sharing experiences of someone who has died, a bereavement. This may bring up experiences that may be upsetting. If you need any support after completing the survey, you can contact the free Marie Curie Support Line on 0800 090 2309. It is open from Monday to Friday 8am-6pm, and Saturday 11am-5pm.
To complete it please click here or visit Facebook - Marie Curie East England or google Marie Curie East England.